Wednesday, September 1, 2010
Kyle has not been well. In fact, he started having diarrhea and vomiting on the 19th of June. It has not stopped, well let me rephrase, it is intermittent. But at least once a week he vomits and the diarrhea is usually pretty sever several times a week. I've done a lot of laundry since the 19th of June.
So we saw a lot of our pediatrician. No luck. Started to see a gastroenterologist. He suggested some scopes. So last Friday, while I was in the throws of food poisoning (Evan was as well, but he was at work), we went to Riverton Hospital and Kyle had scopes and biopsies. This does require him being put out and on an OR table. The doctor told me there were some abnormalities and he had done lots of biopsies. The results would come in today. On a side note, Kyle did not come home sleepy like I had hoped (I was so sick), he did not take a nap until 4pm that day. I hate what medicine does to my child---it is not sedating like I wish it was.
We got the results this evening while I was making yummy lasagna roll ups for dinner, Aiden was screaming in the swing, and Kyle was calling out for me on the opposite side of the kitchen gate. I just shut myself in the pantry. I love our gastroenterologist, but he did read me the report from the lab word for word. What I do know is that there is a lot of inflammation in his stomach, duodenum, colon, and intestines. There is a lot of e-word things that suggest he is having a type of allergic reaction and something having to do with white blood cells is also high. These things are usually seen with celiac disease, but the villi in his intestines are still intact; therefore, it doesn't look like that is the cause. What is the cause? No idea.
We could see an allergist, but the doctor thinks that won't turn out a definitive answer. We could try steroids or we can take him off all dairy (we already have taken him off milk and ice cream, which was causing too much stool earlier in his life) and all soy for ten days and see. We are going the second food route starting Monday when I can get to the store to buy almond milk and have a little time to plan out a dairy/soy free diet. What are we going to eat?
All I know is that there is something wrong with my toddler. He has not been himself and the diarrhea gives him yeast rashes and causes horrible painful skin. His weight is dropping while he is getting taller (he was small to begin with). He is also sleeping--a lot. Most days 15 hours or so--we sometimes even have two naps. On the day in the picture, he went to bed at 8pm one night. At 3:30pm the next day, I went to see if he was still alive. He was up until 5:30pm, slept on my bed for an hour, and went to bed at 7:30pm where he slept soundly until 10am the next morning. He has huge dark circles under his eyes most of the time.
I wish that I had my little boy back and I wish that they could tell me more definitively what was wrong. Something is wrong and the test corroborate that. Now, we just have to play around until we can find a solution.